TWO YEARS ON

Saturday 22nd May

 

It's been a busy couple of weeks, we've done lots and got through another very difficult time.  The days following the 11th May were hard and with them the feeling of emptiness. Another anniversary passed and it starts all over again.  It's difficult to put into words, it's certainly no easier on the second anniversary than it was on the first.  The memories in the days and weeks leading up to it are as strong as ever.  The tears fell steadily and the yearning for Mel to be back with us gets stronger.   Strangely enough, the weekend of the second anniversary was harder than the dates.  As I said previously, my notion that after the first year the "Two anniversary dates" doesn't apply was sadly off the mark.  You still think back on the day... and the date, but the days, ie: the Saturday and Sunday, were definitely harder.  Becky continues to do brilliantly and has started her final exams

 

On 8th May I went to the Lymphoma Association's Annual Conference for the first time and although I turned back at one point, thinking I couldn't do it, I found the strength and was so glad I went.  Four speakers took to the stage, they talked about a range of subjects that included Treating the Elderly, Financial Support for Cancer Sufferers, Looking Good Feeling Better and one that covered the progress that was being made in cancer treatment.  The latter of course begged the question... "What if Now?"  What if Mel had been ill now?  Would the treatment be there to make her better this time?  So, I left with a good feeling, as usual with Lymphoma Association events, I met some lovely people and tried hard not to dwell on the "what if" question too much.

 

The plan had always been to present the cheques for the book profits this particular week so on Monday, Julie and I headed down to Aylesbury to the Lymphoma Association HQ to present them with a cheque for £200.  It was great to see everyone, we had lunch there and headed back.  The following day, I presented cheques at both Queen's Hospital (£400) and Nottingham Hospital (£400), making a total of £1000.  Julie and I both went to Nottingham and although Julie didn't feel like going back into the hospital, the cheques were presented outside the unit and as she walked down, she met up with us and was able to have a chat to Mel's consultant, Dr. Haynes.  I had a chat with Dr. Haynes prior to the presentation and spoke to him of my trip to the Conference and my "What if" theories.  He assured me that Mel's lymphoma was very complex and a cure for was five, maybe six years or more away. So, my question was answered.  We also told him of Becky's success in her NHS role and he was really pleased too.  We finished the day off having Domino's Pizza, something we know Mel would have soundly approved of.

 

Wednesday 12th was a recovery day, although in the evening I did attend a Mayor Making Ceremony in Atherstone.  The new Lady Mayoress has chosen the Lymphoma Association as one of her charities for her year in office, so I went along to represent the association and again, met some nice people and told the Mayoress, if I can be of any help during her term of office she only had to shout.

 

No more news on the student benefits issue, a new Minister for Disabled People has been appointed and I will be contacting her in the next week or so, to clarify the situation and hopefully progress it forward with the October deadline still very much the target.  I'm attending a cheque presentation for the Lymphoma Association on 9th June at Mansfield Town FC and a couple of days prior to that will be back in Aylesbury for the next meeting of the Lymphoma Association's 25th Anniversary Steering Group.  I've also been asked by CLIC Sargent to advise on the benefits issue regarding some work they're giving input to on a new National programme for cancer patients.  That's something for later in the year though.

 

Coming up soon and getting ever closer is the Cycle Challenges.  I've started training and last weekend cycled 67 miles to Mel's bench at Aston Uni.  Wednesday evening I clocked up 25 miles at an average speed of 16mph, so I'm quite happy with that.  If you would like to sponsor me, please do so by visiting here. 

 

Finally this week, I was recently asked by the Burton Mail to take part in their "Five Minutes With . . . feature.  They contact people in the local news to answer a few questions and I was asked, so if you don't manage to get hold of a Burton Mail... here's five minutes with Ian ......

 

Born and bred: BORN BURTON ON TRENT, GREW UP IN MABLETHORPE ON THE EAST COAST

Hobbies: WALKING, PHOTOGRAPHY, FOOTBALL, CYCLING

Favourite book: WE NEED TO TALK ABOUT KEVIN by LIONEL SHRIVER - The only book that after I read it, left me thinking... WOW!  I'm also a big fan of Pride & Prejudice

Favourite film: LOVE ACTUALLY

Favourite food: PASTA

Proudest moment: WILL OCCUR IN A FEW WEEKS WHEN MY DAUGHTER BECKY GRADUATES FROM DURHAM UNIVERSITY

Most embarrassing moment: WORKING FOR GEM AM REPORTING ON LEICESTER CITY V CAMBRIDGE UNITED, GIVING MY FINAL REPORT AND THEN GIVING THE WRONG SCORE OUT AT THE END OF IT.

Biggest inspiration: MELISSA IS MY INSPIRATION FOR THE RAISING AWARENESS OF LYMPHATIC CANCER , THE WAY SHE DEALT WITH THE AWFUL DISEASE WAS TRULY INSPIRATIONAL

Hopes for the future: ON A PERSONAL LEVEL TO RAISE AWARENESS OF LYMPHATIC CANCER AND HOPE THAT ONE DAY A CURE FOR ALL CANCERS CAN BE FOUND.

Biggest/best achievement: GETTING THE GOVERNMENT TO CHANGE THE LAW REGARDING BENEFITS FOR STUDENTS WITH LONG TERM ILLNESSES. WINNING THE LYMPHOMA ASSOCIATION AWARDS TWO YEARS RUNNING AND FINALLY CYCLING FROM LONDON TO PARIS.
 
If you ruled the world…… THERE'D BE ENOUGH OF EVERYTHING FOR EVERYBODY AND EVERTON WOULD BE MORE SUCCESSFUL THAN LIVERPOOL FOR AT LEAST THE NEXT 100 YEARS Smile emoticon 
 
Pet hate: THE "SUE-EM" SOCIETY WE'VE BECOME
 
Greatest love: MY FAMILY
 
Favourite belonging: MY MOBILE PHONE
 
Perfect night in/out: EITHER WAY - MEAL AND MUSIC.

What will your epitaph say:  FOR ONE SO TALL, HE DIDN'T BUMP HIS HEAD VERY OFTEN!

 

 

 

 

IN THE NEWS

Monday 3rd May

 

I remember this time talking about anniversaries coming in twos, the day and the date.  I thought that after the first year that would change, but as the 2nd anniversary of Mel passing away gets near, we remember days and dates once more.  It's not easier and I feel the need to keep busier than ever.  This weekend we've rearranged the furniture in the lounge, I've cleared out my 'man-drawer' and then sorted out my clothes cupboard, sending three bin liners full of clothes for recycling in the process.   This morning I was up at half six and out on my bike for seven, cycling 27 miles in a bid to try and attain a modicum of fitness for my cycle rides that seem to be creeping ever closer.    The tears have flowed more, they started at the Relay for Life for all of us.  I read through my blog from two years ago today and I just wonder how on earth we kept things so normal, it's like your twenty year old daughter dying before your eyes was natural, why didn't we shout, scream, protest, it wasn't natural then and it isn't natural now.  At least reading the blog does bring things into perspective and helps explain why the feelings we have are still there. 

So, what else has been happening in the last couple of weeks?   Well, as mentioned earlier, we attended Relay for Life at Aston University and I made a speech, which again was so much harder than the talks I normally give.  I think it was because we were in 'Mel's place', it was one of the places she belonged and for her not to be there brought about one of those reality checks that punch us every now and then.  It was great to see people though and I'm sure Mel would have smiled when I gave one of her closest uni friends, Hammad a chocolate cake for consumption by his relay team...... well, I think they all ate it.

A couple of days later and I was giving a talk at Queen's Hospital to a group of newly qualified nurses on 'End of Life Care'.  The feedback I receive from these talks is really positive and I do enjoy giving them.  Strangely, I didn't have the emotion of the Aston speech, I seem to be able to almost detach myself from the subject matter and it's as if I'm talking about someone else.  I've been asked back to the hospital to do more talks later in the year and following on from that, the Burton Mail have been in touch as they are interested in running a story on the work I do.  They also ran a story on the bike rides in June.  All good awareness about Lymphatic Cancer and also good awareness for the Lymphoma Association.

Thanks to Rory Morrison (he presented me with my LA awards), I was asked to appear on BBC Radio 4's You and Yours programme this week to talk about the success with the benefits change.  It aired on Thursday lunchtime and can be listened to by clicking here  The story also appeared on the BBC News website, at one stage on the front page running alongside the Gordon Brown/Gillian Duffy saga.   To view the article on the BBC website click here.

Following this, MacMillan Cancer Care have been in touch wanting to cover the story in their quarterly magazine.  I've also been asked if I'd like to have input into a new volunteer role they're creating around supporting people who are fighting for cancer rights, be it on a national or local level.  I look forward to hearing from them.  I am also waiting to hear from CLIC Sargent as they too are interested in following the benefits story in their own media.

I have spoke to Queen's Hospital and Nottingham City Hospital's respective press offices and we will be presenting the cheques for One Day at a Time ~ Mel's Story on Tuesday 11th May, a year to the day the book was launched and of course two years to the day since Mel passed away.  The day before I shall be over at Aylesbury to present the cheque to the Lymphoma Association.  I am also representing the Lymphoma Association at an event at Atherstone on 12th May.   Keeping busy really does help and keeps me from spending too much time in some horrible places.

Finally this week, a big thank you to Julie's work colleagues who took part in the 'Bear Auction' to raise funds for the cycle ride.  They raised just short of a £100, a fantastic effort.  There is currently a bear on auction at Wendy's Hair Salon in Branston and a further auction will start this week.  Thanks again to Lynn Smith from Derek Williams Bathrooms in Mickleover for their support.

If you would like to sponsor me on my cycle rides for the Lymphoma Association, please do so by visiting my online donation page  here.

LOOKING BACK

Sunday 18th April

 

As May 11th gets nearer and nearer the memories of those final few weeks resurface once more and the pain of losing Mel two years ago surges and dealing with that surge in pain gets harder.  Anniversaries come thick and fast.  Was it really two years ago we brought Mel home from Nottingham City Hospital for the last time.  Was it two years ago she bought her mobile phone, a phone that still sits by my bed, charged with text messages sent to us and all her friends as we tried to live our lives as normal as possible.  It was two years ago yesterday that we took her to Liverpool, making the trip we'd planned nine months previous.   

 

I am constantly awoken at this time of year by the birds singing in the early morning, the dawn chorus brings the beginning of a new day, but also a stark reminder of the morning she died, when we went outside the house at about 5am and all we could hear was the birds belting out their morning song.  It's strange how everyday occurrences that normally you wouldn't notice that often trigger certain memories.  Mel's death is still incredibly hard to come to terms with and keeping busy with various projects is one of the few ways I keep my mind from constantly returning to that most awful of times. 

 

There has been much happening over the last couple of weeks, the latest of which brought tears of sadness to the fore once more.  Back in May 2005 (and again in May 2007) Mel and I went to Liverpool to watch their Champions League Final games in the city.  We met a group of people on the first visit and we met up again in two years later.  Mel loved them, it didn't matter that they'd only met a couple of times, they had Liverpool in common and that made them lifelong buddies.  After Mel passed away I always said I wanted to meet them and tell them about Mel and what had happened, but sadly without email addresses (or names) it proved impossible.  I even went up to the city last year before a Liverpool game to see if they were in the bar prior to the match, but alas they weren't.  A couple of days ago I received a message on Facebook from one of the guys asking if I was "May 05 -their favourite photographer".  I replied and we've exchanged a couple of emails, the first of which, from me, had to explain what had happened to Mel.  They were the final people that needed to be told and in telling them there was this feeling that the job of telling everyone Mel had died was now complete.  It brought with it a sadness too, a strange feeling as though that was it, everyone knew now and there was no pretending.  In their eyes, for the past two years Mel had been alive and still was, but now they knew the awful truth.  That was it.  There was no one else, in who's world, she was still alive. 

 

Also this week, a story on the benefit's law change appeared in The Independent and can be viewed here at:  Father wins Cancer Benefits Battle

 

On Monday I attended a meeting at the Lymphoma Association's headquarters in Aylesbury as part of the steering group, formed to generate ideas regarding their 25th anniversary next year.  I had a great day and the pleasure I get from doing this sort of thing, just cannot be measured.  Next Saturday I have been asked to speak at Aston University's Relay for Life, Candle of Hope ceremony and the week after I am scheduled to give another talk at Burton Queen's Hospital on End of Life Care. 

 

My cycle training has also begun, Becky and I have covered over 50 miles this week and having Becky alongside me whilst I'm peddling makes all the difference.  Last Saturday was the first time we'd been on our bikes for a few months and we cracked 36 miles, the furthest Becky has ever done on a bike.  She goes back to uni next week, so I'll have to get used to cycling on my own again :(.  If you would like to sponsor me for my two cycle challenges, you can do so here at: Ian's Cycle Challenge 2010  If you visit the page just click on the link that says "Make a Donation" and follow the instructions.  It is similar to a Just Giving page, the only difference being it is set up as part of Mel's Tribute Fund. 

 

 

 

SPREADING THE WORD

Sunday 4th April

 

Following the news last weekend of the planned changes to the benefits laws, it's been a busy week.  First came and interview at the Burton Mail and they produced a superb article highlighting the battle with the government and subsequent victory.  They also interviewed Janet Dean and she gave her comments.  The article in the Burton Mail can be found by clicking here.  Other articles on the battle with the government and fundraising can be accessed by going to www.burtonmail.co.uk and in the news search engine type in either my own or Melissa's name.

 

On Tuesday I was interviewed on BBC Radio Derby on the Colin Bloomfield show.  Again that is available, but only until Tuesday 6th April.  It can be accessed by going to www.bbc.co.uk /derby and going to the Colin's show page and clicking on the relevant date.  I have also been asked about the possibility of being interviewed on BBC Radio 4, the week after next.    All good stuff and a great opportunities to raise awareness of the disease and the new benefit rules.  It has taken a few days for the reality of winning the battle to get this law changed to sink in, but gradually that is happening.  Again, when I received the letter telling me the news, all I wanted to do was to be able to say "Look at what we've done, Mel".  I know she'd be so proud because she wanted us to continue the fight.

 

Following the announcement on the Facebook page of the Lymphoma Association, I received an email from a lady, which, more than anything sums up why, all the fight and frustration and persistence was worth it.  It read......

 

"Hi,
My name is Alyson and first I would like to say I am so sorry to read about your daughter Mel.  I am writing this email to say congratulations and thank you for winning your campaign for students with serious illnesses.
I was a student nurse when I was diagnosed with Hodgkin's lymphoma in April last year and was unable to get any financial help when I took time out. I am also a single parent and the financial stress has been shocking. I have ended up having to go back to uni just 1 month after finishing treatment as I am am in lots of debt and am at risk of losing my home.
I actually wrote to mu MP on Friday highlighting this loophole.  I know this change in the law cannot help me personally but it is an amazing achievement for people in similar situations in the future.
Thank you once again, and for the work you do for lymphoma awareness"

On Monday I represented the Lymphoma Association at Sainsbury's Veteran's event, I met several people and for once I was the youngest person in the room and not one of the oldest.  I met a gentleman who, in 1963 was diagnosed with Lymphoma.  They caught it early and 47 years later he's here telling the tale.  By his own admission he was lucky that it was caught early, particularly all those years ago.  He's since been diagnosed again with another form of cancer, and was told in 2003 that it was terminal, but as he said, "I'm still here". 

I'm also representing the Lymphoma Association later this month and I really enjoy attending these events.  April also sees the latest of my hospital talks and as we move into May plans are afoot to present the cheques to the hospitals regarding profits from the sales of the book.

Finally this week, I have all but had confirmation that, should the Conservatives get in to power at the next election they will ensure the measures to change the benefits laws go ahead.  I have been in conversation with David Cameron's private secretary and he has moved things along and got answers to questions I've been asking over the last couple of months.  When this is absolutely confirmed I'll post details on here.

 

 

GET IN

Sunday 28th March

 

I received a letter yesterday from my MP Janet Dean, it was in response to a letter she had received from Helen Goodman MP, the Parliamentary Under Secretary of State for the Department of Work and Pensions..... here is a section from that letter:-

 

".... Before I answer the points you raise, I want to tell you how much I admire the way you and your constituent, Mr. Ian Leech have pursued the issue of financial support for students who become too ill to continue their courses.  It is quite clearly right that we try to make it easier for them to get the right financial support in the least stressful way possible.

 

I'm very pleased therefore, to be able to tell you that we are intending to take this measure forward through the department's existing funding.  We aim to put the measure through by October this year. 

 

I would be grateful if you would let Mr. Leech know and pass on my good wishes to him"

 

Yes!!! As from October (at the latest), students like Mel who take time out to recover from long term illness will be entitled to financial support from the government.  It's been a long fight, it's not quite over yet, but we've won!  We've taken on City Hall and we've convinced them to change rules.  Victory for the little man!!

 

Tomorrow (Monday) I shall be representing the Lymphoma Association at a luncheon at the Walker's Stadium, Leicester, something I am very proud to do. 

 

Hopefully, now the nights are getting lighter I shall get out on the bike and rack up some miles in preparation for the sponsored cycle rides in June.

 

WAITING FOR JANO

Friday 11th March

 

There isn't much to report at the moment.  I am still waiting for Janet Dean MP to get back in touch with the latest happenings from Parliament regarding the student benefits issue.  The election is getting ever nearer and I do wonder if it will be sorted before the country votes on a new Prime Minister.  I did write to David Cameron, his assistant replied saying my letter had been passed on to someone else who was responsible for the benefits issues and they would reply to me.  I hope that if they get into power they are quicker at getting things done.  This week I shall be writing to Janet Dean MP and Mr. Cameron's oppo in an effort to get some answers. 

 

I shall also be writing to Queen's hospital and Nottingham City Hospital this week to sort out the presentation of the cheques from the proceeds of the book so I'll post more news on that as and when dates are confirmed.  The cycle ride fund is now up to £175, only another £825 to go!  If you would like to sponsor me, details of the ride can be found in the Cycle Challenge link on the front page. 

 

I have taken the guestbook off the site for the time being, there seems to be a problem with it, the links aren't working and my password and username aren't being accepted so I'll remove it.  If you wish to leave comments, please email me and I will post them on the website.

 

MacMillan are releasing a press statement this week regarding unclaimed benefits that total millions of pounds.  The release is concentrating on cancer sufferers who do not realise they qualify for the benefits or cannot fill out the complicated forms they are presented with.  MacMillan came to me for a quote and that has been used in the release, so hopefully this will make a difference for cancer patients and will send another message to the government.

 

The talk at the hospital went well.  I did find it quite hard talking about "end of life" care, but  it worked and I have another one booked in for the end of April.  I also have another direction that I want to take my talks in, but that's a work in progress at the moment, so hopefully more of that in the coming weeks.  If you are reading this and know of any group that would appreciate a talk, please feel free to contact me.  My talks are aimed at helping people and raising awareness of Lymphoma, there is no charge and can be tailored time-wise to suit a particular group.

 

Finally, you may have noticed there is a new page on the site.  It focuses on grief.  I've talked on the Lymphoma site about this and following my talk to the bereavement counsellors I thought it would be a good subject to include in the site.  It focuses on the aspects of grief during the first and second year and also how it affects our day to day lives. 

 

CHILDHOOD CANCER AWARENESS

Monday 22nd February

 

It's been a few weeks since I updated and I'm not really sure why.  Biggest news of the last month was the talk at St. Giles Hospice to a group of Bereavement Counsellors.  I did this last Tuesday and it went really well.  I was nervous beforehand, the talk was for two hours, but the time flew by and the evening was a success.  The questions asked by the counsellors were really good and I think it gave them an opportunity to ask questions they couldn't ask in a bereavement counselling situation.  I did choke two or three times as the emotion of going back to "that time" hit me.  There may be the possibility of other talks to similar groups and if anyone is reading this and you would like someone to speak, please get in touch.  My next speaking event is on March 2nd at Queen's Hospital to a group of newly qualified nurses and I am discussing End of Life Care.

 

I received the information this week regarding the Nightrider cycle event in June.  It all looks very good and I'm sure once the snow and ice disappear I will be getting on Delilah once more and cycling away for miles and miles.  The link to donate to the cycle challenge is below and also on the front page of the website so please, if you would like to sponsor me, feel free. 

 

I am hoping to present the cheques for the book sales in May to coincide with the second anniversary of Mel passing away.  As things stand at present it looks like we'll be present cheques for about £400 to both the Queen's Hospital at Burton and the Nottingham City Hospital and also a cheque for £200 to the Lymphoma Association so thanks to everyone who bought a copy.  The books will continue to be available and can be ordered in the usual manner, details of which are available on the website.

 

Probably the biggest news in the last few weeks is that I have joined a group of amazing people who are dedicated to raising awareness of cancer in children.  To visit their website, please click here.  I shall hopefully be able to support them in some way, whilst still carrying on the work I do with the Lymphoma Association.  They are a small group of parents who, like myself have children who have been affected by Cancer. They want to raise awareness of cancer in the hope that parents and young people in the future will benefit from an earlier diagnosis.  I've said many times that with the benefit of hindsight, things may have been different for Mel and hopefully by having a nationwide campaign, we will be able to give the gift of hindsight to others.

 

Finally, I have been asked by Aston University to speak at their Candle of Hope ceremony, which is part of the Relay for Life.  I did this last year and am honoured to be asked again. 

 

BUSY WEEK

Sunday 17th January

 

It's been a really busy week this week, in the main due to Janet Dean's debate in the House of Commons on the "Student Benefit" issues.  Janet delivered her speech on Tuesday and a powerful case was made for changing the ridiculous rules that are currently in place.  She presented our case brilliantly and was backed up by James Plaskitt MP before a response was given by Helen Goodman MP, the Minister for Work and Pensions.  The outcome seems very promising, it looks as though they are going to address the problems and basically want to get it right when they change the laws.

 

The full content of the debate can be found here: Janet Dean's Debate

 

Following on from that  I was interviewed by the Burton Mail, who continue to do a brilliant job of covering the story. The Burton Mail article can be found here: Burton Mail article .

 

I also had a call from MacMillan on Saturday and gave a short interview regarding their directory, which as I said before is excellent.

 

I also had calls from a newspaper in Preston, Lancashire and from BBC Radio Derby.  All good awareness of the cause and of the disease too.  The Lymphoma Association have also been putting out messages asking for any other students who have had similar problems to contact them.  It's great to see progress being made and hopefully we will get a positive result before Parliament ends in May.  I shall be writing to David Cameron this week to confirm that if the Conservatives win the next election and the law issues haven't been resolved, he will continue to find a solution.  It was very strange hearing Melissa being talked of in the House of Commons, another of those reality checks, but as I said on Radio Derby, if she had recovered from the disease, it would have been her on the Drive Time show. 

 

I have received a reply from Branston Golf Club regarding sponsoring my admin fees for the Nightrider event in June and they've agreed to it, so that's great news.  I have set up a sponsor page for both cycle rides so please feel free to make a donation.  You can access the page by clicking here: Ian's Cycle Challenge 2010 .

 

INTO ANOTHER YEAR

Sunday 10th January

 

Christmas is well and truly behind us now and we had a nice time.  We put the effort in, spent time with family and it really was a lovely Christmas, far better than we had imagined it would be.  It was also far harder too, for in the midst of those good times comes the realisation that there is someone special who would and should be there to enjoy them with you.  It was going to be hard whatever we did.  The choices were do nothing or make the effort.  We made the effort and whilst it was still hard, we created some new memories and though we missed Mel, I know I felt her spirit was there with us.  She would have loved Boxing Day with Becky, Dave and the Nannies playing on the Wii and also the Sunday when Carol, Keith and the girls came round for the Wii challenge.  It still seems wrong and always will do that she wasn't there with us, enjoying a family Christmas.  I was dreading Christmas, but now looking back, we got it right and it was if Mel's spirit was driving us in the right direction.

 

In terms of the new year, we had a quiet one and went walking, although on New Year's Eve I always remember the first time Mel got tipsy when she went out with Claire to celebrate a New Year.  We have pictures and a video and such memories are priceless.  So now, we're back to work and looking ahead to 2010.  I have two more talks planned for the hospital, one in early March and another in late April.  I also have one for the Bereavement Section at St. Giles Hospice.  Others are pending too.  I've been asked to review a directory by MacMillan as part of the Cancer Voices section I'm involved in and as soon as I get the details I shall be signing up for the NightRider event, a sponsored cycle ride through London, starting at Crystal Palace at 11pm and riding through the night.  We closed the London to Paris sponsorship fund on New Years Eve and the grand total raised was £6479.00 which was brilliant and I can't thank everyone enough.  I don't expect to raise that again this year, but hopefully can keep raising modest amounts in support of the Lymphoma Association.  I have written to Branston Golf and Country Club to ask if they'll put forward some sponsorship, I didn't ask them for the L2P and as Mel worked there, I hope they may support me. 

 

The fight with Number 10 still goes on, with Janet Dean now taking the case for students to have equal rights to others when they contract long term illnesses to the floor of the House of Commons.  Nothing is ever simple, but I won't be giving up on this one. 

 

The Alf calendar raised a fantastic £375.  The person who made the biggest bid then asked if the calendar could be given to the second highest bidder and that was the outcome.  Thank you so much to everyone who bid, it's a fantastic amount and I can't thank you enough. 

 

So, that's it really, still busy, still missing Mel as much as ever.  The longer it is since she died the harder it gets, We find ourselves asking questions, some we've asked a thousand times before, others, such as, I wonder what she'd have been doing now (well, 9am on a Sunday morning, probably sleeping), we can only dream about the answer.  Time isn't healing, but as Christmas proved, it's giving us the ability to deal with situations.  There is a picture at the top of the stairs of Mel and I look at it twenty, maybe thirty times a day..... every now and then, some days more than others, it looks back at me and when it does, the realisation that she's never coming home hits like a ton of bricks.  That's when it hardest, that's when I have to summon up strength to pull myself up and carry on.

 

I'm no longer seeing the bereavement counsellor, I've had lots of help from her, and that, coupled with help from Julie and Becky and friends, plus the medication I was on, have put me back in a position where I have the strength to deal with these situations.  I may need counselling in the future and I know it's there if needed, the same goes for the medication, but for now, I'm doing ok.  When grief hits, I know how to handle it.  How I handle it won't be how others do, we're all different, we all handle things differently, but for me, I think I've got to a place now where I know what I need to do, when it hits me hardest.

 

 

LAST POST BEFORE CHRISTMAS

Sunday 20th December

 

Another busy week which saw me deliver two speeches to trainee Healthcare Assistants at Burton Queen's Hospital.  The talks went well and the feedback I received was really good.  They have discussed doing more in the summer and prior to that, possibly in April.  There is also the chance of a couple more talks in January to newly qualified nurses.   The talks resulted in a few more book sales too and that can only help the charities.  I also went into the chemo unit at Queen's to wish Wendy, Pat and Debbie a Merry Christmas and they asked if I'd do a talk to their staff.  I did find going back to the chemo unit very hard, I could still picture Mel in there having her chemo, full of hope, talking about going back to uni after treatment.

 

Yesterday Becky, Alf and I went for a walk in Dovedale, the walking continues to be my best therapy and I also went out this morning too.  I took a few photographs  as I walked too and these have been posted on Facebook. 

 

Speaking of Alf, I have a 2010 calendar of the Alf which I am auctioning to raise money for the Lymphoma Association.  There are only three in existence, two of which will be given as Christmas presents, so it is almost unique!  Bids can be made via a message to me at Facebook or by emailing me at ian@mad4mel.co.uk   I will announce the winning bid on here in my final post of 2009.  The closing dates for bids is Tuesday 29th August.  It's all for a good cause and for a bit of fun.

 

Happy Christmas

 

MAKING PLANS FOR TWENTY TEN

Sunday 13th December

 

Tomorrow morning I will be delivering a speech to a group of trainee Health Care Assistants and then doing the same on Tuesday morning too.  The talk will last an hour and will concentrate on how a young person feels when they enter hospital for the first time and the responsibility the staff have in making that stay as comfortable as possible.  I use the first chapter of Through Mel's Eyes to put this message across as she speaks from her heart and tells it how it is.  I will also talk about carers/parents and how they feel as well as touching on the importance of communication between staff to help with transitional stages.   I don't think I'm nervous, I'm very proud to have been asked to do it and hopefully others will follow in January.  I have also been asked to deliver a talk to the bereavement staff at St. Giles Hospice and that will take place in February. 

 

I have also decided to take part in a couple of sponsored cycle rides during 2010.  As previously mentioned I shall be taking part in the Lymphoma Association's own annual cycle ride and then a week later partaking in another ride.  More details of that will follow.  It's nothing on the scale of London to Paris, but it's quite an exciting ride and one to savour.  Both rides will take place in June.  You can see the pattern emerging.  Slowly, but surely, the diary for next year is filling up and that's what keeps me going.  I need to keep busy, I need to have projects and after uncertain times this year I feel that I am back in control.  There are still many occasions, sometimes on a daily basis,  where missing Mel is unbelievably painful, but I feel I now know enough about myself to deal with it and come out the other side.  Six months ago, that wasn't the case.

 

Last week I took part in recording a video for the Lymphoma Association regarding awareness.  It was a privilege to be asked and hopefully I did myself justice.  Also this week I had a couple of emails regarding the fight for student benefits.  As you may have seen in the news the pre-budget report came out and as yet I've heard nothing.  My last correspondence from Janet Dean MP said that the budget report contains lots of small print and takes a while to go through.  That was Wednesday.  They're still reading apparently.  If we're not successful in getting the rules changed then MacMillan have already pledged support to make it happen.  The Burton Mail are also on standby with pens poised when the result is announced.

 

KEEPING THINGS UNDER CONTROL

Sunday 29th November

 

It's been a long time since I updated the website as I've been trying to keep emotions/feelings/grief under control.  About a month ago I took a sudden dip again, but unlike last time I managed to keep a lid on things.  I carried on working and have continued to keep myself busy.  Certain projects were bubbling under and I walked (and continue to walk), both mine and Alfie's legs off.  I find that escaping into my own world helps.   I still think of Mel a lot, but I manage to control my emotional state.  The anti depressants are helping, there are a few side effects, but nothing major.  I'm not growing breasts or talking in a high voice or anything like that.  I've always been against taking AD's but I have to accept I need them to function, so what's the point in making things more difficult than they are.  As per usual, my emotions get the better of me when I least expect it.  There is a picture of Mel at the top of our stairs.  I see it every time I walk out of the bedroom or walk upstairs and nine times out of ten it doesn't bother me.  I smile at it.  I say hello to it.  No problem.  But every now and then, I look at it and the picture almost looks back at me and there is this huge reality check.  She's died.  She's not coming back.  I sat and held her hand whilst she passed away. The emotion kicks in and I have to climb back up again.  That's just one of the many "reality checks" that occur on a daily basis.

 

In terms of projects, this Thursday I am taking part in an awareness video for the Lymphoma Association and then in December (14th/15th) I am giving a talk to trainee Health Care Assistants at Burton Hospital.  This will hopefully be followed by another talk in January to two groups of student nurses.  The talks are an hour long and involve a Q & A session at the end.  My work have been brilliant in allowing me to juggle my hours to attend these, maybe they realise the importance of them to me.  They're like a fuel, that most of the time, help keep me going.  I've also received loads of emails over the past few weeks, these can be from health professionals, cancer sufferers, carers etc.  Sometimes they want to say well done, sometimes they want advice and sometimes they just want to talk and get things off their chests.  I make sure I reply to them all and again this gives me a boost as does meeting up with people.  I did that last week and it was comforting to talk to someone who had similar experiences.  Thanks Shirl x

 

There is some news on the Student benefit issue.... or rather there may be, but I have some research to do and I need to speak to the finance guys at MacMillan so all I can say at the moment is watch this space.  Other than that, not much going on.  Can I urge all Mel's student friends to visit www.pitfart.com and submit your entry for the pitfart competition.  It's fun, it raises awareness and at the end of it you could win a trip to Paris, all expenses paid.

 

Finally, as you may be aware, we've had Mel's facebook site memorialised.  This means that people can still add messages on her wall, but it is restricted to her facebook friends.  If you want to add Mel as a friend on Facebook, you still can do I believe by emailing the Facebook team.  If you give them the reasons why, tell them who you are, then it shouldn't be a problem.  If it is, then let me know.

 

Finally, finally..... the London to Paris Cycle ride fund will close on the 31st December and we will then have a final total to add to Mel's tribute fund.  I think we'll be just sort of 15k on the tribute fund, so my next aim is to hit that mark.  I will also be signing up for the Lymphoma Association Cycle Ride in June of next year.  It happens over the 12/13 weekend and is a great event, so if you want to join me, feel free.  I'll post further details as and when they are released.

 

I THINK THEY CALL IT NETWORKING

Sunday 11th October

 

You'll notice the times between blogs is longer than usual, this isn't because I'm getting bored with it or anything like that, it's just that there has been a lot happening and following my depression in the summer I'm looking at ways to move forward in what I want to do and achieve and I don't want to keep going on about how bad the week has been, how much I miss Mel etc.  I would imagine that goes without saying now and when appropriate I will mention that, but not all the time.

 

So, what has happened since I won the Lymphoma Association Raising Awareness Award?  Quite a bit actually, where shall I start.  Ah yes, on October 2nd I attended the Best Practice Seminar at Burton Queen's Hospital and gave a talk to a mixture of doctors, nurses, administration staff and also consultants too.  Was I nervous?  No, not at first, but then when I realised that Mel's consultant Dr. Ahmed was in the audience to see me, I did get a slight case of the leg wobbles but my speech was really well received and it gave me the first hint of what I want to do.  I opened the talk by confessing I was a virgin.... at public speaking and then I read Mel's first blog entry from the book.  A powerful piece of writing that explained brilliantly what going into hospital for the first time was like for a teenager/young adult.  I talked about making the internet available to patients and how easy this was at Nottingham and also about the choices you're given as a carer because there is no "out of hours" doctor available and you have to go to A&E. .  I was asked by three separate people for my contact details and I'm hoping that something will come of that.

 

The following day it was down to London for the Lymphoma Association Annual Ball, another opportunity to meet people, swap email addresses and find out more about lymphoma, patients and carers.  The ball itself was brilliant, the highlight being a speech by young girl called Lindsey who is in remission from Lymphoma and this year cycled across India to raise funds and awareness.  I got the chance to speak to her for a while afterwards and she was great to talk to.  Like Mel, she struggled with financial issues through being a student.  I was also fortunate to chat to Martin O'Neil the Aston Villa manager, his wife had Lymphoma, hence his connection with the organisation. 

 

I attended my counselling session on Monday and it was good to get back into that again.  The bereavement section of St. Giles have also asked me to do a talk at one of their training sessions which, of course, I will be honoured to do.  The same goes for the one I've been asked to do for the District Nurses in the Burton area.  All good stuff and all heading in the right direction.  I've also had an email from a lady called Denise who is doing a Phd based on Cancer and would like my input into that regarding Financial Support for students with Cancer.  A couple of other emails for people reaching out for support have also touched me and I've replied to them.

 

On Friday I travelled down to London for the MacMillan Cancer Voices Conference.  It was my first time and it was a brilliant experience.  I attended workshops on Financial Support, Communicating for Supporting others and pointers on telling your story.  I met some incredible, amazing people and I networked.  I have to admit I'd never networked before, well, I had met people and introduced myself, but never realised that I was networking.  So, I'm now a networker.  The weekend has helped me decide the path I want to take in the future, well, one of the paths!  I spoke to a guy who had set up his own carer support group and I feel that that is one of the areas I'd like to develop.  I've enjoyed the speaking and want to continue with that too.  There are so many aspects to Mel's illness, the diagnosis, the treatment, dealing with emotions, the financial side, stem cell transplants and their impact, palliative care, dealing with the death of a child, bereavement, depression and not to mention writing a book and cycling to France and raising monies for charity.  So, whatever the audience, I feel there is a side of the story to tell that may help and inspire others.  The emails I mentioned earlier and the replies I have had to help I've given have also helped me to decide what I now want to do.  The work with the Lymphoma Association will continue and they will always be the number one on my list for raising awareness and funds, but I feel that with MacMillan's support too, I can achieve even more. 

 

THREE WEEKS DOWN THE LINE

Sunday 20th September

 

It's been three weeks since I last updated the blog, sorry for the delay, but I've been concentrating on other things, one being a change of computer, which needed to be replaced three times!  Anyway, it's all sorted now and I'm back on track.  As many of you will be aware, I was nominated and subsequently shortlisted for a Lymphoma Association Award at their annual Beacon of Hope Awards.  I attended the awards at City Hall in London on Thursday and was fortunate enough to win the Raising Awareness category.  Any one of the shortlisted nominees could have won and it was very humbling to be announced as the winner.  

 

Over the last three weeks I've been slowly getting back into work mode.  I've been doing part time hours, this week I do a mix of part and full time before starting back full time next Monday.  I'm trying to take things slowly, my appetite still isn't what it should be and I do still have my down moments.  Fortunately the tablets seem to be doing their job in helping keep my spirits up.  The notion that the first year after Mel's death would be the worst isn't true.  I miss her more now than I have ever done.  You can't pretend that she's still at uni or away from home for ever and this really hits home.  I also miss sharing the football with her, although with Everton being where they are in the table, I'm sure I don't miss her jibes at me supporting a crap team.... no, of course I do!  I would swap anything to have things back to how they used to be.

 

I am still attending counselling sessions which help, I cycle, walk the Alf and I've also taught myself to use Photoshop which means I'm getting more out of my photography.  It's still a strange time, but I feel stronger and ready to start raising more awareness, funds etc.  My main aim for the next twelve months is to get the government to fund students with long term illnesses.  They are looking at changing the deeming rules in the next pre-budget report, however with the government going on about making massive cuts etc, I'm not holding my breath.  If they don't change the rules then I will be looking into human rights law because I firmly believe that students are treated with discrimination because they are students.  I will also be looking to take the story to a wider audience and have several contacts who I can speak to.

 

The Burton Mail did a fantastic job in reporting on the awards and the story can be read by clicking here.  If you do a search on their site and type in my name you can read all the stories they have published.   In terms of fund raising, the cycle ride fund for the London to Paris went over the £6,000 mark last week and there is still another couple of hundred pounds to add, so I think by the time it's closed we will be looking at close to six and a half thousand pounds, so a big thank you to everyone who has donated, helped and supported me.  I intend to do the Lymphoma Association's cycle ride next year and have one or two other ideas up my sleeve. 

 

So that's it at present, I'm still also pursuing the public speaking side of things and last week I also appeared in a video produced by MacMillan that will be shown to GPs prior to a Primary Care Conference this week.  In two weeks I am attending the Best Practice Seminar at Queen's Hospital Burton to speak to them.

 

In terms of the book, it is still selling steadily, we recently ordered another ten copies.  If you would like a copy please visit the Book section of the website and details of how to buy it are on there.

 

BACK TO WORK

Tuesday 1st September

 

Today (Tuesday), I've gone back to work.  I'm only there part time at the moment and to be honest, that is enough.  I found it quite stressful and tiring, but it was an important step to take and I took it.  I shall be doing part time hours at the moment, gradually working up to full time in the next few weeks. 

 

I've had an invite from the Lymphoma Association to attend the Beacon of Hope Awards in September, I don't know yet whether I've been shortlisted for an award, but the invite is regardless of that, so I'll be hotfooting it down to London soon.   The counselling is ongoing and I feel it is making a real difference.  I'm back at the doctors again in mid September and also have a blood test to undergo before then. 

 

In terms of everything else, I received a letter from Janet Dean MP last week and with it a copy of a letter she'd received from Kitty Ussher's replacement.  They are postponing changing the deeming rules for students with long term illnesses due to the current economic climate.  I feel this a cop out, how much will it actually cost to actually carry out these changes?  It's very easy to blame everything on the current economic climate.  I will of course be continuing to pursue this and have already sent off an email back to Janet Dean MP and have also cc'd the Lymphoma Association and MacMillan.  The local newspaper has also been updated.  Janet Dean will be meeting the MP for the DWP and we will see what comes of that.  I have contact numbers for National Newspapers and if the answers I receive aren't to my satisfaction, then I shall be contacting them. 

 

I also received a reply this week from one of the balloon labels that was sent out on Mel's birthday.  It came from a six year old lad who found the label on his dad's farm in Barrow upon Humber.  That means that particular balloon had travelled about 100 miles.  It also means that some of the others may have landed in the North Sea :).  

 

MEL'S BIRTHDAY

Thursday 20th August

 

As expected, Mel's birthday was very emotional.  Fourteen balloons were released by friends and family and I baked Mel's favourite chocolate cake and that was shared out too.  It was all very low key, but I know she would have approved of what was done.  Today (Thursday), I've felt absolutely drained, but so glad I made the effort.  It will be interesting to see if we get any emails back saying where the balloons were found.  They were last seen heading north!!!  Liverpool played Stoke last night at Anfield and I just know that had Mel still been with us, we'd have been there watching the game, that would have been her birthday present and we'd have visited the Blob in the city beforehand to see the guys from Champions League night.  Of course, there is also the thoughts of what a 22 year old Melissa Alice Leech would have been like.  Would she have changed? Still been the same?  Sadly, I can only guess.  Today also signals the start of two years since diagnosis and all that brings.  It's a sad time as thoughts drift back to those first days in hospital, the hope, the fear, it still haunts me.  I look at the clock and think what was happening two years ago.

 

A bereavement section on the Lymphoma Association's website message board was opened this week.  Another difference that we've made for Mel.  I have posted on there and I'm sure in time others will use it to share their thoughts, experiences etc. 

 

My appetite is still absent without leave.  I went to the doctor on Monday and he says it's anyone's guess as to when it will come back and there is a possibility it may never return.  Time will tell.  I'm still eating minimalist amounts, but my weight has levelled out.  The issues surrounding my lymphocyte count are being argued out by the consultant and haematologist and I have to have another blood test in mid September.   The scan was clear so I can forget about that.  My plan is to return to work on September 1st. 

 

BETTER DAYS

Thursday 13th August

 

It's been two weeks since my last confession.  What has happened?  Well, I've had some bad days, but they've been outnumbered by the good days.  The reasons for the bad days are many and varied and we are approaching that time of year when certain anniversaries come thick and fast.  I've had an appointment again with the counsellor again and that is really helping, as did the appointment with the Psychiatric Consultant.  I think I've learnt more about myself in the last couple of weeks than I have in the last 40 years!

 

Good news regarding the book, St. Giles are going to be using it as a resource book to help others.  I'm still in contact with MacMillan about them doing the same.  It's so good to know that so many people are getting benefit from our experience and it continues to help people.  I've had more really nice emails from people, some of whom I know, some of whom I've never met and they help with my own recovery.

 

My appetite is still shot to pieces and is showing no signs of returning.  I've started going out short distances on Delilah, hoping that maybe that would kick start it, but as yet it hasn't happened.  I continue to live mainly on sandwiches.  The weight is hovering around the 90kg mark which is about 14 and a half stone in English money.  I don't feel unhealthy, but energy wise, it does take it out of me, not eating properly.  I also find that talking to the counsellor/consultant very draining too.  I suppose there's a lot of emotional stuff coming out that's been locked away for a long time and that is very tiring.

 

Next Wednesday is Mel's 22nd birthday.  We were unsure what to do, but I had the idea of inviting the grandparents round for the afternoon.  I'm going to make a birthday cake and then release a dozen balloons (red ones of course).  They will have tags on them with the mad4mel website address and the lymphoma association website address on them and they will ask people to email me and say where they've found them.  It's a nice way to mark Mel's birthday and also it's another way of raising awareness of the disease!  If you would like to make a donation to the Lymphoma Association to mark Mel's birthday then you can do so by visiting www.lymphomas.org.uk Once on the site, go to Melissa Leech's Tribute Fund and you can make a donation.  For £10 you can light a candle and leave your name on there. 

 

So that's about it for now, like I say, feeling better, still a way to go, but I'm getting there.  This next week will no doubt be a tough one.  Mel's birthday, memories of two years ago and the hospital diagnosis etc and of course the start of yet another Premier League season.  I heard a comment on the TV the other day that said that with Alonso going to Madrid there were only two players left at Liverpool from the 2005 Champions League side.  Gerrard and Carragher.  Mel's favourites.  Another reminder that all these changes are going on and she's not here to enjoy them.  Happy Birthday Mooch x

 

 

TURNING CORNERS

Thursday 30th July

 

As the headline says, I feel as though I've turned a corner in the last week.  It's a very gradual corner rather than a sharp bend, but I'm heading in the right direction.  I think the pills are slowly beginning to kick in and I'm off the sleeping tablets.  Apparently, Zopiclone's are quite addictive they are usually only prescribed for a few weeks at a time.  The first couple of nights were terrible for sleep, but then some advice from the doctor about restful sleep was taken on board and I've had a couple of good drug unaffected night's sleep.  The advice was simple really and is available from http://www.patient.co.uk/ .  Just type in sleep and it will give you loads of info.  It must be a good site because Dr. T uses it!  Simple things like no caffeine six hours before bedtime, relax before you go to bed and most importantly of all, use ear plugs.  Being a light sleeper, I hear everything, so the ear plugs are brilliant, I pop them in and drift off into a world of my own.  I still wake up in the night, but getting off to sleep is easier as there aren't any distractive noises to keep me awake. 

 

My mind is still all over the place at times, but again as the pills take over my brain, that should ease.  I find that I am very analytical of Mel's disease at the moment, something I've done before.  I'm questioning the ifs, whats ands and maybes as well as the Whys.  I visited the bereavement counsellor on Tuesday and that was really useful.  Just to be able to sit and talk about everything was good, I didn't get much from our meeting back in March, but it was different being one to one on Tuesday and I found it very helpful.  I'm booked in again for another session in a couple of weeks.  The doctor's visit went pretty much as expected.  Weight still down, no news on the lymphocyte count, meeting with consultant being arranged.  The other addition to my ailments at present is a swelling in the lower groinal region.  They think it is a hydrocele, but I need a scan just to be sure there is nothing else nasty down there (so to speak) and that is booked for Monday 10th August.  It never rains, but it pisses down!!!

 

I've had a couple of lovely emails from people off the lymphoma association message board and they really do help to lift my spirits.  I've also been speaking to the Lymphoma Association about the possibility of having a section on the site for bereaved friends, families and carers.  I think it would help and the idea has been put forward to the powers that be.  It is difficult to talk about bereavement on the message board because there is so much positivity on there, but sadly people do die from Lymphoma and it would be nice to have somewhere where people could go and talk, swap information and maybe even arrange to meet. 

 

Finally, I picked up Delilah today.  For those of you who don't know, Delilah is my new bike.   She's been in the shop waiting for me for four weeks and so I got a lift into town and brought her back home.  She's brilliant and I can't wait to take her out on the roads.  It won't be just yet, my energy levels need building a bit before I go out on her, but she's there waiting for me, all shiny and blue!

 

Thanks again for all your kind words and good wishes, they all help!

 

LATEST UPDATE

Friday 24th July

 

For the first time in a few weeks I can feel my mood lifting slightly, not a big amount, but enough for me to feel a difference.  Due in no small part I'm sure to the tablets, the dosage of which has been doubled in the last couple of days.

 

As you will notice if you read below, my last visit to the doctor was on Thursday 15th July, with a follow up appointment on Tuesday 28th July.  That all changed over the weekend following a visit from Pauline (Mel's District Nurse), who after looking at me thought I should see Dr. T again sooner, so an appointment was booked for Wednesday.  I had a good chat with Dr. T about things and whilst he was concerned, he said he wasn't overly worried, but on saying that he did want to refer me to a consultant.  The main worry at the moment is my appetite which has just vanished.  Six weeks ago I was eating cereal for breakfast, sausage sandwich mid morning, sandwich and crisps for lunch, full plate at tea, snacks in between and biscuits.  Now, I could go all day with nothing to eat and I still wouldn't feel hungry.  At present I live on mainly toast or cheese and crackers, with the odd biscuit in between.  What is worrying is that although I know I have to eat, nothing takes my fancy and furthermore, I don't feel hungry.  This has resulted in some weight loss.  Last Thursday I was 94 kilos.  By Wednesday I was down to 90.  The other problem I have is that what I do eat, doesn't stay eaten and just goes through me.  Coffee gives me terrible stomach pains too, which is strange.  When I stand up I feel dizzy, it's all very strange.

 

All the blood test results came back normal with one exception.  My lymphocyte count has, for the last 18 months been steadily dropping.  As you can imagine, words with lympho in them do startle me a bit . . . nympho, I can cope with, but lympho does make my ears prick up.  Anyway, the story is that in March of 2008 my count was 1.8.  Since then every blood test I've had has seen it drop to the point where, when it was at 1.2, Dr T contacted Mel's consultant Dr. Smith to ask his opinion.  There wasn't any cause for concern at that stage but it needed monitoring.  It has since gone down again twice to the point where it is now 0.8.  I think the worry isn't necessarily in the score, but more the fact that it's slowly declining, so again the haematologist has been called and I await their opinion.  The lower the count, the harder it is to fight off infection and 1.0 is considered the average, so I'm not in danger or anything, but I would prefer it to be rising a little. 

 

So that's it really, I'm weak, I'm tired, I'm trying to force myself to eat.  I'm trying to force myself to do more exercise, but with no food to fuel my body that is hard to do.  The doc says that when I start feeling better then I should walk and cycle to help my recovery.  Maybe next week I'll pick up my new bike which has been in the shop for the last four weeks!!!!

 

I've also made initial contact with the bereavement counsellor, so that should be happening soon.

 

 

 

A NATURAL REACTION TO GRIEF

Thursday 15th July

 

I went to see the doctor a week last Tuesday. I’ve had a rough few weeks and after a weekend spent in hospital with Becky, I needed a break. I wasn’t depressed, I was grief-stricken. Of course, on my work sick certificate, the doctor can’t put grief as a reason for my time off, it has to be labelled stress. If only it were that simple. I’ve felt lower these past few weeks than I have in a long time. I think completing the cycle rides and having the book published drained me emotionally, far more than I ever imagined. They had kept me going. In some of the darkest times there was always the need to carry on, to train for the rides, to finish the next chapter. With the completion of the Lymphoma Association ride that all finished and suddenly, it seemed there was nothing. 

Also, there was an overwhelming feeling that nothing had changed. I’d cycled all those miles, written all those words, but nothing had changed. Mel was still not with me and nothing I had done had made the slightest bit of difference. I struggled with the fact that Becky was coming home. Again, there would just be the three of us, three is an odd number and I feel the odd one out. Julie and Becky are working together during the day and have so much to talk about. I feel lonely. I know it may sound selfish, but it’s how I feel and sometimes that can’t be helped. People keep saying to “remember I have another daughter” which I find insensitive. I feel a sense of guilt and responsibility that Becky has lost her sister. Sounds silly doesn’t it? I can’t help it. My mind plays crazy tricks on me at times and there’s nothing I can do to stop it. 

Last Friday I was sat in hospital with Becky. I knew she’d be ok, she was in the right place, the doctors had spotted whatever it was and she would be fine. I sat at her bedside and all I could think was why the hell didn’t we get Mel to hospital sooner? How crap was I not to have noticed that something was extraordinarily wrong? What if we could turn the clock back two years and could have Mel seen by a consultant. Why was I so blind? So stupid?   I walked miles.  I talked to myself, talked to Mel and tried to break away from the way I was feeling. I remember talking to Mel when she was alive about styles of football management and how some players need an arm round the shoulder, whilst other’s need a kick up the arse. I need the arm. The kick up the arse sends me further and further away. I have never believed in suicide, but I can understand how people get there. There are times this week when the river has looked inviting and the sleeping tablets like smarties, but maybe because Mel never had a choice and I have, then I carry on, however hard it may be … or maybe I’m just a coward and haven’t the courage.  Of course, people will say I should think of others, but as I’ve found out, life goes on, people carry on and nothing really changes. Mel dying hasn’t changed the world, people still fight and argue over the most stupid of things and people move on. They always will. There are times when I think that if I knew 100% if I took my own life I’d be reunited with Mel then I’d do it. Selfish? Probably, but then losing Mel has made me selfish. Another comment I hear is “Oh well, at least you’ve still got Becky”. . . Becky is not compensation. She's not a consolation prize. I had two daughters. I still want two daughters. Why should I be grateful that I’ve got one left? I had two children and I still want two. 

I know doctors/experts would say that I am depressed.  I’m suffering from grief.  I need to find purpose once more. A few days ago I received two letters in the post. One, a home made card, from the Lymphoma Association thanking me for all  I’d done in the past year and how they appreciated it. Secondly, a letter from my MP regarding the changing of the rules regarding financial support for students with long term illnesses. It said how they were continuing to fight for a change and a meeting would be set up with the new Minister. Glimmers of light and something to fight for. 

I want to start cycling again and the support I’ve received from my L2P cycling buddies (you know who you are) has been appreciated more than I can say and long may it continue. The good news for them is that I’ve actually reached the 15 stone target weight for the parachute jump, but it’s not a form of diet I’d recommend. My appetite is shot to pieces at the moment and I just don't feel hungry at all.  I live on cheese and crackers.   On Tuesday and Thursday of this week I visited Aston University, it was graduation day for a lot of Mel's friends and I wanted to be there to support them.  I knew that spiritually, if there was one place Mel was going to be this week, it would be Aston.  She wouldn't have necessarily been graduating herself, but she would definitely have been there supporting her friends.  I was made to feel really welcome and it gave me a real boost. 

On Thursday I visited Dr. T, the GP who was closest to Mel during her illness.  My ten minute appointment slot last forty minutes.  A proper doctor who was prepared to sit and listen to all that was worrying me.  The result is that I have some tablets to hopefully give me and my appetite a boost.  A full on blood test which I expect to come back normal, but which was done as a precautionary measure just in case the loss of appetite is due to another issue and a scan too which is in relation to something else that was worrying me. 

I have to go back to see the doctor in ten days to discuss how things are progressing.  Hopefully by then, the appetite will be returning and I'll be keeping the food down.  That is another issue at the moment, what little I do eat doesn't stay down for long.  I sleep a lot too.  I think that's the nature of the grief and also the lack of food.  The doctor has also suggested that I attend bereavement counselling again, but on my own.  On my sickness certificate for work he didn't put depression, he didn't write stress, he wrote "A natural reaction to grief". 

So, that's where I am at the moment, I hope I've gone as low as I am going to go and from hereon in I can begin to head back to a more comfortable place.  It won't happen overnight, but given time I shall be back cycling, walking the Alf for miles and miles and playing five a side. 

 

BACK TO THE QUEENS

Sunday 5th July

 

The truth is I'm struggling at the moment, I'm missing Mel and I'm hurting.  On Friday I was having a bad day, I couldn't concentrate and I was quite tearful.  I took Becky to the doctor's for a routine appointment at 4.50pm.  By 5.15pm I was parking the car at Queen's Hospital as Becky was referred by her GP to A n E with suspected appendicitis.   I dropped Becky off at the entrance and I went and parked the car.  I walked down the corridors and the memories came flooding back and I found I'd walked past A & E and was heading toward Ward 7.  It was as if I expected Mel to still be there, waiting for me to go and see her.  It was horrible.  A bad day turned horrendous.  I walked into A & E to see Becky in exactly the same cubicle as Mel was in when she was diagnosed the day after her 20th birthday.  It's a week before Becky's twentieth.  And to cap it all, there in his green tunic was the doctor who first realised that there was something more to Mel's illness than tonsillitis or  a chest infection.

 

I then sat with Becky whilst she was asked the same questions Mel had been asked two years previous and then sat and held her hand whilst they inserted a cannula.  She squeezed my hand in just the same way Mel had done.  We spent the evening in A & E before Becky was admitted to a ward.   The majority of Saturday was spent at the hospital.  Thankfully, it looks like Becky will be released today, but we really didn't need this.  I haven't eaten since Thursday, I tried to have a meal yesterday, but what I ate went straight through me. I can't seem to keep big meals down at the moment, but it's not for the want of trying.

 

Becky being taken in to A & E was traumatic enough, but the emotional side of it, for us all was huge and like I said, something we could well do without.  I can't speak for Julie and Becky, but I feel battered, as if losing Mel and all that entailed wasn't enough, we then have this, which by comparison is nothing, but the emotion that comes from it, is draining.  The whole reminder of the hospital thing being brought back in glorious Technicolor!!!   I wonder when I'm gonna get a break, the way things are going it will probably be an ankle or a leg!!!

 

HIGH PRAISE INDEED

Sunday 28th June

 

Not much to report this week.  Emotions pretty much the same as last week and one day in particular was not good.  The main news this week is that there's been another article in the Burton Mail, this time about the invite to speak at the Hospital's Best Practice day in October.  There are some great quotes from Dr. Ahmad, who was one of Mel's consultants.  To view the article go to click here.

 

... AND IT ALL BEGINS AGAIN

Sunday 21st June

 

The longest day.   Every day seems long at the moment, some seem never ending.  Life seems like a game of snakes and ladders at the moment, the book launch and the cycle rides are the ladders that give you a lift, but inevitably, this time of year sees me landing on a snake that takes me all the way back to the start.  At this time two year ago, Mel's symptoms were beginning to surface and minds are cast back yet again, wondering if we could have changed things, could things have been different.   This week the football fixtures came out, another reminder that August is fast approaching and with it Mel's 22nd birthday and the fact that it's two years since diagnosis.  I was reading a blog entry from this time last year yesterday evening and the hurt and pain expressed then are every bit as real now. Time isn't healing. 

 

Reading last week's blog you may see mention of Kitty Ussher MP.  She is due a meeting with my own MP, Janet Dean regarding the financial support for students with long term illnesses.  Guess what, this week, "she resigned to save the government further embarrassment" or to put in in real terms, she's been caught fiddling her expenses.  She's done nothing wrong of course and chances are it will be an oversight, but it is really beginning to piss me off.  All that needs doing is a simple amendment to the law or the rules.  If a student falls ill with a long term illness, they get benefit, they don't have to use their student loan (which unlike other members of society who fall ill, students have to pay back).  It's not rocket science.  Just do it!!!!  What is also very annoying is whilst we were struggling to make ends meet and trying to find money to drive to hospital to see our seriously ill daughter, these scavengers were claiming obscene amounts of money for all manner of things.  Yet as soon as they get caught, bang, the rules on their expenses change in the blink of an eye.  Ten percent of what some of those thieving ministers were claiming would have been enough to see us through.  Please note, I wanted ten per cent, I'm not being greedy and wanting more than I'm entitled too.

 

I've put actions in place this week to see about doing some public speaking, I've spoken to a few people and hopefully something should come of that.  I'm looking toward the Round Table, Rotary Clubs, WI etc.

 

Nothing much else to report this week, apologies if it's a moaney one, but sometimes it has to be, the truth is I still miss her as much as ever.

 

I THINK I MAY BE A CYCLIST

Monday 15th June

 

Following on from the London to Paris, I completed the Norwich to Norwich via Ipswich this weekend.  Approximately 135 miles of East Anglian countryside over two days to raise funds and awareness of Lymphoma.  The ride is organised by the Lymphoma Association and there were 30 - 40 cyclists taking part.  I took the first day at a leisurely pace but I missed my L2P cycling buddies.  Their messages and texts helped to get  me through though and I rolled into the car park of the Holiday Inn at Ipswich around half past three on Saturday afternoon.  Sunday, I wanted to see what all my training over the last six months had done and I decided to up my pace.  I set off and was first past the post for the morning ride.  I know it's not a race and I didn't treat it is one, but it was a good feeling to be first and the look on Julie's face (who thought I may have cheated) made coming in first all the better.  The afternoon I continued to give it the STP (Stream Team Power), but a wrong turning by the A11 bridge put paid to any hopes of repeating the morning's finish, but I did come in the top six. 

 

So that's my two sponsored events over, the Lymphoma Association will be around six and a half to seven grand better off, I've made some amazing friends and I've grown to love going out on my bike and whilst these have been my first sponsored cycle events, I'm sure they won't be my last.  I've been to look at a new bike today and can't wait to get out and about in the saddle again.

 

We've ordered some more books this week, as we have now all but sold the initial 150.  Also, on the news front, a letter arrived from my MP, Janet Dean on Saturday to say that they are continuing to fight for students with long term illnesses to given better financial support and the meeting with Kitty Ussher is to discuss funding.  More on that as and when it happens, but it's good news. 

 

I have had an article in the Burton Local News magazine and also a piece I wrote for the Lymphoma Association Annual Review has now been published too.  I'm now looking ahead to the next few months and see where things take us.  The work with the Lymphoma Association is the most important part of whatever we do, other stuff will fit in and around.  I know we're probably never going to reach the fundraising heights that we've achieved this year, but we can help in other ways, particularly where awareness is concerned.

 

Thank you again to everyone who sponsored me on the cycle rides, you make such a difference for Mel and she would be so proud of you.  When Mel contracted pneumonia in October 2007, she said that her aim was to get better, get her degree and look toward working full time for a charity.  She appreciated the work they do and the help they give.  Although Mel never got to fulfil her new found dream, we like to think that events such as have occurred over the past couple of weeks help us to do it on her behalf. 

 

"Mel, look at what we're doing for you, we're making a difference  x"

 

BEEN THERE, DONE THAT . . . and reality sinks in

 

Tuesday 9th June

 

Well, my London to Paris adventure is over.  It started with an amazing ride from St. Pancras station to Blackheath last Tuesday and ended under the Eiffel Tower on Saturday afternoon.  In between times I met some amazing people and made some new friends, who I hope to stay in touch with for many years to come.  Following my ride from the station to Greenwich, in which I got lost near Lewisham, I met up with fellow cyclists and people I'd exchanged messages with on the forum.  We had a leisurely afternoon in the sunshine before heading into the nearby village for a meal.  Next morning we were up at 5am, breakfasting at 6am and cycling to Dover at 7am.

 

Wednesday 3rd June

The first day was probably the hardest physically, the time constraints, meant less time stopping and chatting, and more time cycling, though the leafy Kent lanes we cycled on at times did allow you to catch up with fellow cyclists and exchange stories about why you were doing this mad, crazy thing.  Some of the Kent hills were tough and one in particular got the better of me and I ended up walking the last 30 yards or so up it.  This was the only one throughout the entire trip that I walked up.  I had my front bar bag packed with goodies and of course my camera and on the top a picture of Mel and I to spur me on when it got tough.  We reached Dover at 4pm, boarded the ferry a couple of hours later and set sail for France.

 

Thursday 4th June

A great day, our group was well and truly formed from the previous day, there was myself, Bex, Becky, Michelle (Boo and Moo), and Dave P.  They were all great company and I know I couldn't have got through the ride without them.  They kept me smiling.  Dave P is currently cycling to Geneva, but rather than race on ahead, he stuck with us and powered up the hills.   We cycled through quiet French villages with their brightly coloured frontages and shuttered windows, alongside streams where we stopped for many a photo opportunity.  As we had left London the previous day I'd had it pointed out to me that one of my spokes had gone.  The support crew had spares, but none that would fit my bike.  They said they'd try and get one for me and true to their word, they got one in Abbeville.   We arrived at the hotel and they sorted it out.  Two days cycling and over 150 miles with a wobbly wheel.  The evening was spent in the hotel bar and the laughter continued until tiredness got the better of us all. 

 

Friday 5th June

By far the hardest day mentally.  There was no time constraint, but there were a lot of hills.  The word undulating had been used on the two previous days to describe the terrain, today we were told it was hilly.  There was also the promise of a bar/cafe by a stream that didn't materialise.  Despite the emotion though, we saw each other through, still took a fair few pictures and enjoyed another evening in the hotel bar.

 

Saturday 6th June

So far the weather had been practically perfect, but today the rain came, not a lot of it, but enough to dampen the roads into Paris.  The roads were mainly flat, although there were a couple of "beastly" hills that tested us.  My gears were playing up in the morning and as a consequence I had to cycle the 30 odd morning miles in third gear!  As ever though the support team were on hand to fix them at the lunch stop and I was ok in the afternoon.  Driving through Paris was a memorable experience, I seemed to take the lead for some reason and I managed to keep our group, and a few others, together through the Parisian streets to the meet up point, a mile or so from the Eiffel Tower.  We drove that last mile to the sound of cheering shoppers and rugby fans, who were in the capital for the French Rugby Cup Final.  Word has it we were stopped by the police to let Michelle Obama and her children pass by in her car and she waved at our group, although I didn't see that personally.  We cycled round the Arc de Triomphe, up the Champs Elysse and to the Eiffel Tower, where I was met by Becky and my sister Karen, her husband and children.  The cyclists had a celebratory meal in the hotel in the evening with friends and family and four of our group sat up till 2am reminiscing about the trip and reliving the laughs we'd had. 

 

Sunday 7th June

I had breakfast and walked to the Eiffel Tower to meet up with Becky.  As I sat waiting for her the emotion began to hit me.  I wanted Mel there, I wanted to tell her what we'd achieved for her.  The tears duly arrived as for the first time in days the realisation began to sink in as to why I'd been getting up at 6am at weekends, cycling miles and miles on my own in all kinds of weather.  I've said before on this blog that grief hits hardest when you least expect it, it certainly hit me that morning as I sat underneath the tower.  After walking up to the first level of the tower with Becky and her friends, we said our goodbyes and went our separate ways.  I joined my new cycling friends, Michelle and Bex and we spent the rest of the morning watching the world go by under the tower.  A few hours later and I was on my way back with some fantastic memories and more importantly, fantastic friends.  We said our goodbyes at the station, promising to keep in touch.  I'm sure we will.  I caught the train home and arrived back in Burton at 10pm. 

 

Of course, that is just a brief summary of the ride, there are a stack of other memories I could write about, but Delilah, patches, Woo hoo, hoo hoo hoo, etc, wouldn't translate so well on here, you had to be there!

 

Monday was a day of catching up, paying sponsor money into the bank, sorting out book orders and trying to download nearly 400 photographs.  Tuesday I went back to work.  I started off fine, but after an hour or so, I couldn't stop crying, the emotion of it all washed over me and I had to come home.  It's another sign that the grief I'm feeling for Melissa is never far away, always there and just waiting to pounce.  It's a vicious circle that I'm trapped in.  I can't sit around and do nothing because when I'm alone that's when I have time to think and thinking isn't good.  I need to do these things to stop my mind from being drowned by all that happened during Mel's illness.  I still have plans for things I want to do, but when projects are completed there is always this realisation that nothing I do changes anything.  It doesn't bring Mel back.  I've written a book, I've raised money, I've cycled to Paris, but nothing has changed, there's still an empty place at the dinner table, there's still a mobile phone unused at the side of the bed.  Nothing I do can bring her back and that's what I want more than anything in the world.

 

Tomorrow, I may be fine, but today I can't even think about Mel without crying.  I can't do anything about it, I have to just let it happen.  I suppose the months of training and the week of actually doing the ride have caught up with me.  Of course, come Friday, it's off to East Anglia to do it all again, this time just a couple of days, but still 128 miles.   I suppose the two  questions I'm asked more than any now are 1) Would I do it again?  and 2) Have I had enough of cycling?  Well, yes I'd do it again and in terms of cycling, lets just say I'm currently looking to buy a new bike!!!!!

 

The pictures of the ride can be seen on Facebook (if you can't access them, just add me as a friend and I'll accept you) and also on my own personal photo site which can be accessed by clicking the link on the left.

 

Thank you again to everyone who sponsored me, we're heading towards £5,500 for the London to Paris and £1,000 for the Lymphoma ride, so thanks again to everyone.  Thanks to all the other cyclists who made the trip, and special thanks to to my fellow riders, Michelle, Bex from Wales, Dave P and Becky for making it such a memorable trip. 

 

CLOSER STILL

Sunday 31st May

 

Well, another 48 hours and I shall be on my way to London.  Another 72 hours and I'll be on my way to Paris.  Training is all done, well as all done as it was ever going to be and apart from the gentle ten miles through the streets of London on Tuesday lunchtime, that's it.  The bike has had the once over and after a good clean this afternoon, will hopefully be raring to go.

 

My only dilemma at the moment is which bag to use to pack my stuff in.  I'm travelling light, no, in fact, I'm travelling very light.  The big question today is pants.  How many do I need.  Do I need any at all?  Cyclists don't wear pants apparently.  Anyway, enough of pants, there's just a few last minute items to get this morning.  Work tomorrow and then that's it.  Am I looking forward to it?  Yes and No.  It will be an adventure, albeit maybe a painful one.

 

I am hoping to put small updates on Facebook and Twitter as I travel along.  If you're a twitterer then feel free to add me, my twitter name is melsdadian. I will hopefully be taking some pics along the way too.

 

Nothing much else to report this week.  I've still had no reply from the communications department at Nottingham City Hospital.  It's now been three weeks and three phone calls since I first contacted them.  I've also had no response as yet from Janet Dean to my email last week.  Nottingham are annoying me slightly, considering the book is raising funds for them, you'd think that they'd have the decency to respond.  I can feel a letter coming on when I get back from Paris.

 

Radio Merseyside have also expressed an interest in doing a piece on the book when I return from my two cycling trips (Remember, I'm doing the Lymphoma Association ride a week later).  If you want to order a copy of the book, then do so by using the link on the left. 

 

Please note, next week's update will be later than usual as I don't get back from Paris until late on Sunday evening.  Thanks to everyone who has sponsored me and anyone who still wants to sponsor me can do so by going towww.justgiving.com/4mel  .

 

GETTING CLOSER

Sunday 24th May

 

Following all the hectic activity of the previous week, the last seven days have been somewhat quieter.  Book sales have been steady and along with the sales there have been several kind comments from people who have already read it. 

 

The countdown to Paris is now well and truly on, with the cycle ride due to start a week on Wednesday.  Training hasn't been easy over the last few weeks for a lot of reasons, but on Saturday I peddled my way to Mel's bench and back, a total of 66 miles.  I'd done 21 the previous day and today I did a short 8 mile circuit. Saturday was the last of the big rides before the "big ride".  This week will be a few shorter trips as I keep the legs turning over.  The sponsorship is still coming in too and thanks to all who have dug deep, it is for a brilliant cause and I know the Lymphoma Association are grateful for the support we give them.  Mel too, would be so proud.

 

I had a letter from Janet Dean this week to say that she is trying to set up a meeting with Kitty Ussher MP regarding the benefits situation for students with long term illnesses.  I must admit I'm surprised at this as I don't see why another meeting is needed.  We have letters stating that they hoped to sort this out by the end of 2008.  We also have letters saying the current system is unfair and needs to be changed so quite why another meeting with an MP is needed, I'm not sure.  I always thought we were told to vote on the party and not the person.  That said, surely the party have made the decision to change things.  I will reply to Janet Dean over the weekend and try to get a further explanation.  I suppose MP's have had a lot on their minds recently.  My own view is if they've defrauded anyone they should be prosecuted, but apparently if you're an MP and you make false claims you've made an error of judgement.  I'm sure the prisons are full of people who made errors of judgement.  It does annoy me that whilst they were fiddling their expenses and cheating the system, we were struggling to make ends meet and relying on charitable donations to keep our heads above water.  Melissa didn't receive a penny for five months whilst some of those in power were lining their pockets with bloody duck houses and moats.  You can understand why I'm not that happy with any politicians at the moment.

 

That is something that I will get my teeth back into when the cycle rides are over and done with. 

 

TIME FLIES

Sunday 17th May

 

Last week was so busy it was untrue.  From the moment I finished last week's blog entry to today so much has happened.  After finishing writing on here last week, I sent out a few emails to various media places regarding the book.  On Monday, the first anniversary of Mel passing away we went up to Birkenhead to collect the books and met Becky in Liverpool.  We spent some time walking round the city, Mel loved the place and the memories of her walking through the centre with her flag came flooding back.  Happy memories.  The sadness comes with the knowledge that you'll never have the opportunity to share those times together again.  On Saturday evening on Match of the Day they mentioned the Hillsborough Memorial game, Liverpool Legends v An Allstars eleven.  Mel and I would have gone.  I know we would.  It would have been our time and the knowledge that days like that are over crush you. Whilst in Liverpool we had a coffee in Jamie Carragher's Sports Bar (he makes a mean coffee does Jamie) and then we went to Birkenhead to collect the books.

 

Tuesday was spent doing interviews with BBC Radio Derby and BBC Radio Nottingham and we've had positive responses from both of those.  I also went to see Dr. Haynes at Nottingham City Hospital to give him a copy of the book.  He asked me to get in touch with the communications lady at the hospital.  There is a big initiative in the hospital at present regarding the needs and wants of patients and he felt the book would be useful and the hospital could benefit from it.  He said again that Mel had had a profound effect on him and that she was very special and that brought a tear to my eye.  We finished the day off at Queen's hospital and spoke to Debbie and Pat and Wendy the canula queen before meeting Pauline Spratt from the League of Friends and handing her some books to sell on our behalf.

 

On Wednesday we went to Aston Uni to deliver some books to Carly and Dan as they are distributing them for us, so if you're at uni and haven't as yet picked up your copy, please get in touch with Carly Lewis or Dan Malone.  On the way to Aston we called in and saw Dr. Jai and gave her her copy.  I had an email timed at 12.50am the following day to say she'd read it and thought it was wonderful.   On Thursday I sent out a few emails to various charities asking if they could promote it for us.  MacMillan replied saying that they do not promote books although they may be interested in using it as a resource book, which in itself would be a great result.

 

On Friday evening I received a call from Dr. Ahmad, one of Mel's consultants and the person who saw her through her bout of pneumonia.  When you get a message on your home phone asking you to ring Dr. Ahmad, you do worry.  My first thought was "Oh no, what have I put in there to upset him".   It wasn't that though.  Quite the opposite.  He'd bought a copy and was ringing to congratulate me on it.  He'd not read it in detail, but was impressed with what he'd seen and he told me he had emailed about five people (all with long titles after their names), one I remember was the Director of Nursing and Services.  Anyway, the upshot is, they want Julie and I to attend a Best Practice day at the hospital and to speak about our experience and up forward any ideas we feel could improve things.  It left me speechless, but so proud.  That is what I call Making a Difference 4 Mel.

 

On Saturday I got back on the cycle and I could tell I'd been off it a week.  Only two weeks now till London to Paris,  I've managed to sort my travel out and I'm now going down by train.  I did 27 miles on Saturday followed by another 16 today, not the 75 recommended, but it will do for now.  I aim to get on the bike and do at least ten miles every day between now and when I leave. 

 

If you would like a copy of the book, One Day at a Time, please visit the link on the left to order.  All orders direct from ourselves, the hospital league of Friends and the Burton Mail make £5.50 profit per copy sold.  Orders from online book sources such as Amazon etc do not.  Please do NOT order from Amazon, WH Smith, Waterstones etc as they take a large percentage that gives us back only a small profit.

 

One Year On

Sunday May 10th

 

I can't really begin to describe how we're all feeling this week.  Tomorrow (Monday) will be a year to the date since Mel passed away.  Today (Sunday) is a year to the day.  As I've mentioned before, you get two shots of every anniversary in the first year.  But it is just an anniversary and our pain doesn't really surface any more or any less than on other days.  Anniversaries are just dates, moments in time when we know that certain events occurred, our  own personal "anniversaries" happen throughout everyday.  They are things that happened all the time, the phone calls, the texts, the long chats, the times the four of us sat down to eat a meal.  They are constantly there, surfacing in our minds, most times hourly, always daily.  This week has been hard as we cast our minds back to those awful days before the 11th May.  Watching our daughter die before our eyes and at times almost wishing she would die so she would be out of the pain she was having to endure.  No-one should be in a position where they are almost wishing their child would die, it's not how life is supposed to be.

 

The cycling has continued this week, another fifty odd miles chalked up on Saturday, this time over the hills of Cannock Chase.  The ride is just three weeks away now. 

 

The book will be available as from Monday/Tuesday.  We're picking them up on Monday and then we'll start to distribute them.  The Burton Mail have kindly agreed to sell them (and are not taking a percentage), as have the Hospital league of friends.  So as from Tuesday they will be available at those outlets, as well as from ourselves.  Details are available by clicking the Book Order link on this website.  Also, if you search on Ebay by entering One Day at a Time, you can purchase off there too. 

 

 

A week off the Bike

Sunday 3rd May

 

Following the puncture and broken spoke of last week, the bike went in for repair and service this week.  Consequently, I've not been cycling, but did go on a couple of runs.  The first was ok, the second didn't really happen as Alfie wanted to firstly make friends with an Airedale, then make friends with a guy in jeans and white trainers and finally pinch a golf ball  whilst it was in play.  My planned run was more of a stop start walk/run.  Yesterday I was back in the saddle and did a round trip of 56 miles.  I combined my trip with a visit to one of Mel's consultant's, Dr. Jai.  It was lovely to see her and her family. 

 

Today I've followed up my 56 miles of yesterday with a hilly 20 mile ride.  Tomorrow, I plan to do another shorter ride but I'm starting off by going up Rangemore Hill and that's a big steepy one.

 

We've had the second proof of the book back and all the alterations that we wanted to make have been made so it's now a case of copies being printed.  We're still on course for launching during the week of 11th May.  On the Tuesday, the 12th, I'm being interviewed on BBC Radio Nottingham about the book.  I also have possible interviews on Radio WM and Radio Derby.  There's also an article going in the Burton Mail so hopefully, we're getting some good local publicity.  I've tried a couple of national radio stations/TV, but nothing doing at the moment.

 

I've set up a Facebook group for people who may be interested in buying a copy.  Anyone can join if they're a Facebook member and it was just to give us an idea of numbers to order.  The book will be available at the Queen's Hospital League of Friend's shop and I'm also in discussion with the WRVS at Nottingham City Hospital and also the Burton Mail. 

 

Details of postage and packing costs for America have also been added to the "book section" as has the link to the E-bay site.  Please bear in mind when ordering off E-bay, the book isn't released until week commencing 11th May and as with other orders, will be despatched that week.

 

 

The Joys of Cycling

Sunday 26th April

 

I'm rapidly coming to th